Capturing Essence for Care: Storytelling that Promotes Personhood in Healthcare

1. Living with Dignity: Dementia Advocate Mary Beth Wighton on Capturing Essence and Improving Healthcare

Lisa Joworski Episode 1

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Join our discussion with Mary Beth Wighton, inspiring international dementia advocate, writer and speaker as we talk about what it's like living with a diagnosis of probable Frontal Temporal Dementia and learn how she captures her essence.  

Our conversation covers:

  • what receiving the diagnosis is like and the importance of bedside manner;
  • coming to terms with a diagnosis not just for herself but for family; 
  • choosing to live with purpose and the role of being an advocate;
  • creating culture and policy change through community;
  • speaking up for our own needs and being a part of our own health care team;
  • the importance of positive energy and connection;
  • communicating our wishes with family and your most trusted supports;  
  • why words matter (Caregiver vs. Care Partner)

**Note:  This episode was recorded in the fall of 2022.

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Thank you for listening!

Do you have a question or a topic related to "capturing essence for care" that you would like discussed on the podcast? Send Lisa an email: awestruckaspirations@gmail.com

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Intro and outro music with thanks: Upbeat and Sweet No Strings by Musictown

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